Do you follow children and adolescents after venous thromboembolism (VTE) for post-thrombotic sequelae?
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Yes
No
Thank you for your answer, no further participation is requested.
What country do you practice in?
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Which center do you practice in?
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How long have you been managing patients with post-thrombotic sequelae?
Post-thrombotic sequelae refers to long-term consequences of venous thrombosis of extremity and non-extremity locations; including the pulmonary, cerebral, renal, and portal venous systems.
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0-5 years
6-10 years
11-15 years
16-20 years
>20 years
How many children and adolescents with a new VTE are diagnosed at your center each year?
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0-50
51-100
101-150
151-200
>200
For non-neonatal patients with EXTREMITY VTE your practice is to monitor which of the following for post-thrombotic syndrome (PTS):
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Follow all patients
Follow on a case-by-case basis
Which of the following do you take into account to determine which patients to follow for non-neonates ?
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What other factors do you take into account?
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For non-neonatal patients with NON-EXTREMITY VTE your practice is to monitor which of the following for post-thrombotic sequelae:
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Follow all patients
Follow on a case-by-case basis
I do not follow non-extremity VTE for post-thrombotic sequelae
Which of the following do you take into account to determine which patients to follow for non-neonates ?
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What other factors do you take into account?
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In non-neonates, during the FIRST YEAR after VTE diagnosis in the below sites, at what time points do you see patients in follow up (select all that apply)?
The option "
Extremity
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The option "
The option "
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PE = pulmonary embolism; RVT = renal vein thrombosis; PVT = portal vein thrombosis; CSVT = cerebral sinovenous thrombosis
In non-neonates, BEYOND THE FIRST YEAR after VTE diagnosis in the below sites, at what time points do you see patients for follow up (select all that apply)?
The option "
Extremity
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The option "
The option "
The option "
The option "
Do you follow neonates at a different frequency that non-neonates to evaluate for post-thrombotic sequelae?
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Yes
No
For neonatal patients with EXTREMITY VTE your practice is to monitor which of the following for PTS:
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Follow all patients
Follow on a case-by-case basis
Which of the following do you take into account to determine which patients to follow for neonates ?
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What other factors do you take into account?
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For neonatal patients with NON-EXTREMITY VTE your practice is to monitor which of the following for post-thrombotic sequelae:
* must provide value
Follow all patients
Follow on a case-by-case basis
I do not follow non-extremity VTE for post-thrombotic sequelae
Which of the following do you take into account to determine which patients to follow for neonates ?
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What other factors do you take into account?
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In NEONATES, during the FIRST YEAR after VTE diagnosis in the below sites, at what time points do you see patients for follow up (select all that apply)?
The option "
Extremity
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The option "
The option "
The option "
The option "
In NEONATES, BEYOND THE FIRST YEAR after VTE diagnosis in the below sites, at what time points do you see patients for follow up (select all that apply)?
The option "
Extremity
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The option "
The option "
The option "
The option "
Do you have a dedicated clinic where you follow patients with or at-risk for post-thrombotic sequelae?
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Yes
No
What year did your clinic start?
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The option "
Which of the following subspecialists participate in the care for post-thrombotic sequelae patients at your institution (select all that apply)?
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Is vascular surgery care:
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Incorporated into a post-thrombotic sequelae clinic
Accessed through the institution
Is interventional radiology care:
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Incorporated into a post-thrombotic sequelae clinic
Accessed through the institution
Is pulmonology care:
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Incorporated into a post-thrombotic sequelae clinic
Accessed through the institution
Is cardiology care:
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Incorporated into a post-thrombotic sequelae clinic
Accessed through the institution
Is nephrology care:
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Incorporated into a post-thrombotic sequelae clinic
Accessed through the institution
Is neurology care:
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Incorporated into a post-thrombotic sequelae clinic
Accessed through the institution
Is physical therapy:
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Incorporated into a post-thrombotic sequelae clinic
Accessed through the institution
Is the compression garment technician:
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Incorporated into a post-thrombotic sequelae clinic
Accessed through the institution
Is psychology:
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Incorporated into a post-thrombotic sequelae clinic
Accessed through the institution
The option "
Which PTS diagnostic tool do you use (select all that apply)?
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Which other PTS diagnostic tool do you use?
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If you do not use a diagnostic tool, how do you diagnose PTS?
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Do you follow biomarkers for an individual at risk for PTS?
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Yes
No
What biomarkers do you follow an individual's risk for developing PTS?
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What other biomarkers do you follow for an individual at risk for PTS?
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Do you longitudinally monitor these biomarkers at the end of therapeutic anticoagulation or only use values from VTE diagnosis?
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Time of VTE diagnosis only
Longitudinally monitor the values (please provide details below)
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Which measures do you use to prevent PTS?
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How long after VTE diagnosis do you prescribe compression garments to prevent PTS (months)?
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What pressure do you initially prescribe to prevent PTS?
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15-20 mm Hg
20-30 mm Hg
30-40 mm Hg
Other
What pressure do you initially prescribe to prevent PTS?
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Do you typically prescribe knee or thigh-high compression garments in lower extremity VTE to prevent PTS?
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Knee-high
Thigh-high
The physical activity you prescribe to prevent PTS:
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The option "
How long after VTE diagnosis do you prescribe physical activity to prevent PTS?
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Describe Other:
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The option "
For how long do you prescribe physical activity to prevent PTS?
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How long do you prescribe physical activity?
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What venoactive drugs do you use?
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How long after VTE diagnosis do you prescribe venoactive drugs to prevent PTS?
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For how long do you prescribe venoactive drugs to prevent PTS?
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Please describe when thrombolysis is used to prevent PTS
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What other measure do you use to prevent PTS?
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The option "
Do you use any of the following to treat PTS (choose all that apply)?
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Which PTS severity do you prescribe compression garments (select all that apply)?
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Which PTS severity do you prescribe compression garments?
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What pressure do you initially prescribe to treat PTS?
* must provide value
15-20 mm Hg
20-30 mm Hg
30-40 mm Hg
Other
What pressure do you initially prescribe to treat PTS?
* must provide value
Do you typically prescribe knee or thigh-high compression garments in lower extremity PTS?
* must provide value
Knee-high
Thigh-high
The physical activity you prescribe to treat PTS:
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What venoactive drugs do you use to treat PTS?
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Describe what patients with PTS you refer for venous intervention
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What do you use to treat PTS?
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The option "
Which of the following do you monitor long-term for post-thrombotic sequelae (select all that apply)?
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POST-PULMONARY EMBOLISM SYNDROME
Which of the following post-PE syndrome do you screen for (select all that apply)?
Post-PE syndrome comprises right ventricular dysfunction, chronic thrombotic remains in the pulmonary arteries, worsened quality of life and/or chronic functional limitations, such as dyspnea and exercise intolerance or chronic thromboembolic pulmonary hypertension
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What other long-term post-PE syndrome do you monitor for?
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The option "
Which of the following diagnostic tools to evaluate patients for post-PE syndrome following PE do you use (select all that apply)?
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What other diagnostic tool do you use?
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RENAL VEIN THROMBOSIS POST-THROMBOTIC SEQUELAE
Which of the following post-RVT sequelae do you screen for?
Post-RVT sequelae comprises hypertension, renal atrophy, chronic kidney disease or kidney failure
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What other long-term sequelae do you monitor for?
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The option "
Which of the following diagnostic tools to evaluate patients for post-thrombotic sequelae following RVT do you use (select all that apply)?
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What other diagnostic tools do you use?
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PORTAL VEIN THROMBOSIS POST-THROMBOTIC SEQUELAE
Which of the following post-PVT sequelae do you screen for?
Post-PVT sequelae comprises portal hypertension, hepatopulmonary syndrome and portopulmonary hypertension
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What other post-PVT sequelae do you screen for?
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The option "
Which of the following diagnostic tools to evaluate patients for post-thrombotic sequelae following PVT do you use (select all that apply)?
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What other diagnostic tools do you use?
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CEREBRAL SINOVENOUS THROMBOSIS POST-THROMBOTIC SEQUELAE
Which of the following post-CSVT sequelae do you screen for (select all that apply)?
Post-CSVT sequelae comprises motor deficits, visual deficits, cognitive deficits, epilepsy, impaired speech, behavior problems or headache
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What other post-CSVT sequelae do you screen for?
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Which of the following diagnostic tools to evaluate patients for post-thrombotic sequelae following CSVT do you use (select all that apply)?
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What other diagnostic tools do you use?
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What other site do you monitor long-term for post-thrombotic sequelae?
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